Page 160 - DOS Kongressen 2012 - Abstracts

A review of national shoulder and elbow joint replacement registries
Jeppe Rasmussen Rasmussen, Bo S. Olsen
Department of Orthopedic Surgery Herlev Hospital; Department of Orthopedic
Surgery, Herlev Hospital
There are few shoulder and elbow replacements compared to the
hip and knee and even in national registries the number of reported
replacements is often limited. It would be desirable to pool data from the
separate registries.
Purpose / Aim of Study:
To review the funding, data handling, outcome
measurements and findings from existing national shoulder and elbow joint
replacement registries; to consider the possibility of pooling data between
registries; and to consider whether or not a Pan European Registry might be
Materials and Methods:
Annual reports, and publications from ongoing
national registries were searched using Google, PubMed, and links from other
registries. Representatives from each registry were contacted.
Findings / Results:
Six shoulder registries and five elbow registries were
established between 1994 and 2004. The shoulder registries have included
between 2498 and 7113 replacements and the elbow registries between 267
and 1457 replacements by the end of 2009. The registries were initiated by
orthopedic societies and funded by the government or by levies on the implant
manufacturers. In some countries data reporting and patient consent is
required. Completeness is assessed by comparing data with the national health
authority. All registries use implant survival as the primary outcome. Some
registries use patient reported outcomes as a secondary outcome.
A registry offers many advantages; however, adequate long term
funding and completeness remains a challenge. It is unlikely that international
registries can be implemented but more countries should be encouraged to
establish registries and by adopting compatible processes data could be pooled
between national registries adding considerably to their power and usefulness.